My 12-Step Attitudes

People who soar are those who refuse to sit back, sigh, and wish things would change. They neither complain of their lot nor passively dream of some distant ship coming in. Rather, they visualize in their minds that they are not quitters; they will not allow life’s circumstances to push them down and hold them under. –Charles Swindoll

Stiff Person Syndrome, (SPS), is a a rare neurological bird.  SPS is a difficult and life-altering diagnosis, hard to understand, let alone explain to others. Grief, anger, fear, guilt, and depression are common emotions. Losing one’s physical abilities and facing an uncertain future add to the frustration and fear.

The most common question/fear for everyone is prognosis. (After 20+ years, it is still an issue for me at times.) Will I get worse? How much time do I have? I realized tomorrow was never a guarantee for me before diagnosis. I took my future for granted. Now, I cherish the day. The moment is all anyone has.

Coping is a daily endeavor. It is not a one-time, come-to-terms resolution. Good and bad SPS days fluctuate while life’s problems continue to invade. For me, it is either deal with it, or lose all of me to SPS. (Deal or no deal?) I choose to be a player in life. Deal.

Several things have stood me well in living forward…”in spite of.”

– My faith and trust in God.
– Love for my family.
– Determination.
– Learning about SPS. (I am my own informed advocate.)
– Understanding my medications.
– Allowing myself an occasional pity party.
– A quirky sense of humor. (Laugh often)
– An interest in others. (Stay interested & interesting.)
– Developing hidden resources within myself.
– Counting my blessings.
– Cut unnecessary negatives from my life.
– Count my spoons carefully. (*Explained below.)

Life continues to be a a daily challenge but in hindsight; my life is definitely worth reliving.

*The Spoon Theory

You’ll Never Walk Alone

Copyright © 2010
Revised 2012

My 12-Step Attitudes

Everything can be taken from a man but one thing: the last of the human freedoms — to choose one’s attitude in any given set of circumstances, to choose one’s own way. ~Viktor Frankl


If you cannot be a poet, be the poem. ~David Carradine


There is no telling how many miles you will have to run while chasing a dream. ~Author Unknown


Hope is that thing with feathers that perches in the soul and sings the tune without the words and never stops… at all. ~Emily Dickinson


Faith makes things possible, not easy. ~Author Unknown


Peace on the outside comes from knowing God on the inside. ~Author Unknown


Difficult things take a long time, impossible things a little longer. ~Author Unknown


We acquire the strength we have overcome. ~Ralph Waldo Emerson


Fall down seven times, get up eight. ~Unknown


A friend is one of the nicest things you can have, and one of the best things you can be. ~Douglas Pagels


Humor prevents one from becoming a tragic figure even though he/she is involved in tragic events. ~E.T. “Cy” Eberhart


True silence is the rest of the mind, and is to the spirit what sleep is to the body, nourishment and refreshment. ~William Penn


The best and most beautiful things in this world cannot be seen or even heard, but must be felt with the heart. ~Helen Keller
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