The Mobility Project approached NORD regarding the mobility challenges of a rare disease for their ezine. It was an honor and a privilege to share my mobility challenges with Stiff Person Syndrome.
Finding Someone Like Me.
Understanding and Coping With the Challenges of Rare Diseases
By Cindy Horbrook
May 01, 2012
I wish to thank Cindy Horbrook for a well-written article and NORD for their referral. (Steph, you are the best.)
I am very impressed with the scope of all the helpful resources made available by the Mobility Project. Please check out their site. As always, I have a deep gratitude for NORD and their continuing efforts to bring awareness of rare disease to patients, society and the medical community. In 1994, NORD was my first contact for information about my diagnosis.
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